Rare Anemias Foundation


Cooley's Anemia Foundation (http://www.thalassemia.org/)
Diamond Blackfan Anemia Foundation (http://dbafoundation.org/)
Fanconi Anemia Research Fund, Inc. (http://www.fanconi.org/)
Thalassemia Treatment Centers (http://cooleysanemia.org/updates/pdf/TTC2012.pdf)
  • Weill Medical College of Cornell University, New York City
    Director: Patricia Giardina, MD
    Contact: Dorothy Kleinert, 212-746-3404

  • Children's Hospital of Oakland
    Director: Elliott Vichinsky, MD
    Contact: Dru Foote, 510-428-3347

  • Children's Hospital of Los Angeles
    Director: Thomas Coates, MD
    Contact: Susan Carson, 323-669-4132

  • Children's Healthcare of Atlanta
    Director: Jeanne Boudreaux, MD
    Contact: Jennifer Hughes, 404-785-3614

  • Children's Hospital of Boston
    Director: Ellis Neufeld, MD
    Contact: Michelle Burnett, 617-355-8246 (New Patients)
    Contact: Jennifer Braunstein, 617-355-2457 (Existing Patients)

  • Children’s Memorial Hospital, Chicago
    Director: Alexis Thompson, MD
    Contact: Janice Beatty, 773-880-4618

  • Children's Hospital of Philadelphia
    Director: Alan Cohen, MD   
    Contact: Marie Martin, 215-590-2197

  • Children's Medical Center Dallas
    Director: Zora Rogers, MD   
    Contact: Deborah Boger, 214-456-6102

  • Texas Children's Hospital (Houston)
    Director: Donald Mahoney, MD   
    Contact: Marie Martin, 832-822-4213


Social Work
Kathleen Durst, MA, LMSW
Social Worker
The Cooley's Anemia Foundation
212-279-8090 ext 202
Webpage:          http://ghr.nlm.nih.gov/condition/congenital-dyserythropoietic-anemia
Facebook:          CDA Support Group (Congenital Dyserythropoietic Anemia)
                           CDA (congenital dyserythropoietic anemia)
                           Rare Anemias Foundation
Yahoo Groups:   CDAsupportgroup
Webpage:          http://www.porphyriafoundation.com/
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Webpage:          http://www.sideroblasticanemia.org/
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Webpage:          http://www.rialto.com/g6pd/
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Webpage:          http://www.musc.edu/BCMB/onlinepubs/molecularmedicinejournal/vol1999
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Webpage:          http://www.ehow.com/about_5092826_microcytic-anemia.html
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