Rare Anemias Foundation


Who We Are

Rare Anemias Foundation (RAF) was created by David Levy, MA in 2013 in order to serve under-represented patients with very rare types of anemia. Included in this category are the Congenital Dyserythropoietic Anemias, Congenital Erythropoietic Porphyria, Congenital Sideroblastic Anemia, Rare Red Cell Enzyme Deficiencies, Congenital Megaloblastic Anemia and Congenital Mycrocytic Anemia. Our mission is to provide information and support to patients and their families who suffer from these disorders as well as to further research being developed in this area for curative purposes.