Rare Anemias Foundation

Subtitle

http://josephinebila.com/
http://www.thalassemiapatientsandfriends.com
Cooley's Anemia Foundation (http://www.thalassemia.org/)
Diamond Blackfan Anemia Foundation (http://dbafoundation.org/)
Fanconi Anemia Research Fund, Inc. (http://www.fanconi.org/)
Thalassemia Treatment Centers (http://cooleysanemia.org/updates/pdf/TTC2012.pdf)
  • Weill Medical College of Cornell University, New York City
    Director: Patricia Giardina, MD
    Contact: Dorothy Kleinert, 212-746-3404

  • Children's Hospital of Oakland
    Director: Elliott Vichinsky, MD
    Contact: Dru Foote, 510-428-3347

  • Children's Hospital of Los Angeles
    Director: Thomas Coates, MD
    Contact: Susan Carson, 323-669-4132

  • Children's Healthcare of Atlanta
    Director: Jeanne Boudreaux, MD
    Contact: Jennifer Hughes, 404-785-3614

  • Children's Hospital of Boston
    Director: Ellis Neufeld, MD
    Contact: Michelle Burnett, 617-355-8246 (New Patients)
    Contact: Jennifer Braunstein, 617-355-2457 (Existing Patients)

  • Children’s Memorial Hospital, Chicago
    Director: Alexis Thompson, MD
    Contact: Janice Beatty, 773-880-4618

  • Children's Hospital of Philadelphia
    Director: Alan Cohen, MD   
    Contact: Marie Martin, 215-590-2197

  • Children's Medical Center Dallas
    Director: Zora Rogers, MD   
    Contact: Deborah Boger, 214-456-6102

  • Texas Children's Hospital (Houston)
    Director: Donald Mahoney, MD   
    Contact: Marie Martin, 832-822-4213
Psychology

Psychiatry

Social Work
Kathleen Durst, MA, LMSW
Social Worker
The Cooley's Anemia Foundation
212-279-8090 ext 202
[email protected]
Webpage:          http://ghr.nlm.nih.gov/condition/congenital-dyserythropoietic-anemia
Facebook:          CDA Support Group (Congenital Dyserythropoietic Anemia)
                           CDA (congenital dyserythropoietic anemia)
                           Rare Anemias Foundation
Yahoo Groups:   CDAsupportgroup
Webpage:          http://www.porphyriafoundation.com/
Facebook:          Rare Anemias Foundation




Webpage:          http://www.sideroblasticanemia.org/
Facebook:          Rare Anemias Foundation




Webpage:          http://www.rialto.com/g6pd/
Facebook:          Rare Anemias Foundation



Webpage:          http://www.musc.edu/BCMB/onlinepubs/molecularmedicinejournal/vol1999
                           /pernicious_anemia/pernicious_anemia.htm
                           http://ghr.nlm.nih.gov/condition/thiamine-responsive-megaloblastic-anemia-syndrome
Facebook:          Rare Anemias Foundation


Webpage:          http://www.ehow.com/about_5092826_microcytic-anemia.html
Facebook:          Rare Anemias Foundation